My disease is a very rare form of muscular dystrophy, called disautonomic mitochondrial myopathy.
Category Archive: 1990
I think that someone is watching out for me, God, my guardian angel, I’m not sure who that is, but they really work hard.
Sad things happen. They do. But we don’t need to live sad forever.
It doesn’t matter how you pray. Just pray. All religions are beautiful and they all have one common belief. There’s something bigger and greater than us that can give us and take from us life. It is better than the here and now.
People will come up to me everywhere and say, ‘Ah, I saw you on ‘Larry King,’ and, ‘Ah, I saw you on ‘Oprah.’ And it’s really nice, and a lot of people say, ‘Is it a pain?’ And I say ‘No.’ And it’s not annoying.
My life mission is to spread peace to the world.
I feel that God has given me a very special opportunity that I should not let go to waste. I use the gift he has given me.
The doctor said, ‘He can’t last a week.’ And I did. And they said, ‘There’s no way this kid’s going to last a month.’ And I did. And so they said, ‘Two years. He’s not going to make it.’ Two years. ‘Five years. He can’t do that.’ I lived to be five years. ‘He’s never going to hit double digits.’ And here I am, a new teenager.
If it came to a magic genie, I would ask him for two extra wishes. One would be that no one would have to live with the muscular dystrophy disease or any disease. And the second one would be world peace, that we just stop fighting, talk about things, and we could live in harmony once again, like God intended us to do.
I think I may have to grow up without growing old. I think we’re going to have to define differently what I’m going to be. We’re going to have to define my growing up differently.