I feel that God has given me a very special opportunity that I should not let go to waste. I use the gift he has given me.
The doctor said, ‘He can’t last a week.’ And I did. And they said, ‘There’s no way this kid’s going to last a month.’ And I did. And so they said, ‘Two years. He’s not going to make it.’ Two years. ‘Five years. He can’t do that.’ I lived to be five years. ‘He’s never going to hit double digits.’ And here I am, a new teenager.
If it came to a magic genie, I would ask him for two extra wishes. One would be that no one would have to live with the muscular dystrophy disease or any disease. And the second one would be world peace, that we just stop fighting, talk about things, and we could live in harmony once again, like God intended us to do.
I think I may have to grow up without growing old. I think we’re going to have to define differently what I’m going to be. We’re going to have to define my growing up differently.
I want to be remembered as a poet, a peacemaker, and a philosopher who played.
Even though the future seems far away, it is actually beginning right now.
God gives me hope that there is something greater than us, something better and bigger than the here and now, that can help us live.
Sometimes my body wakes me up and says ‘Hey, you haven’t had pain in a while. How about pain?’ And sometimes I can’t breathe, and that’s hard to live with. But I still celebrate life and don’t give up.
I want to keep publishing books, and writing and spreading my heartsong through the world.
I write to express my thoughts, my feelings. I want people to think.