I never question God. Sometimes I say, ‘Why me? Why do I have such a hard life? Why do I have this disease? Why do I have siblings who died?’ But then I think and say, ‘Why not me?’
Unity is strength… when there is teamwork and collaboration, wonderful things can be achieved.
Every year, once a year, in Maryland, I go for a week and overnight camp with about 50 to 60 kids with muscular dystrophy, all ages, seven to 21. And it is really fun. I have some great friends there and wonderful counselors.
I do fear death. But what I actually fear is not dying. I mean, true, it will be sad. But I know that there is a better place waiting for me.
Keep all special thoughts and memories for lifetimes to come. Share these keepsakes with others to inspire hope and build from the past, which can bridge to the future.
We’re divorced from my father because he did some mean and scary things to us.
We all have life storms, and when we get the rough times and we recover from them, we should celebrate that we got through it. No matter how bad it may seem, there’s always something beautiful that you can find.
My disease is a very rare form of muscular dystrophy, called disautonomic mitochondrial myopathy.
I think that someone is watching out for me, God, my guardian angel, I’m not sure who that is, but they really work hard.
Sad things happen. They do. But we don’t need to live sad forever.